A few people have asked what Nate’s special needs are. He has Sensory Integration Dysfunction. The link will explain it a whole lot better than I can, it’s long, but you don’t have to read the whole thing. I’ll wait til you come back, and then I’ll talk about how it relates to Nate.
OK, you’re back? Cool.
I first noticed that there was something “wrong” with Nate when he was about 15 months old, or so. Everyone else’s kids were developing way faster than Nate was, they were hitting milestones, whereas Nate was not. For several months I tried to tell everyone I knew that Nate’s development was not normal, but everyone told me that he would catch up, and I had several people actually tell me, “Don’t you know kids develop at different rates?”
No. I’m an idiot. I had no idea.
Hahaha, I can laugh about this now. I couldn’t laugh about this back when it was happening. I was very hurt and angry that people that have known me a long time would think that I had no idea that kids developed at different rates, or that I was the panicky sort. Finally, when he was 18 months, I KNEW there was something going on with Nate, and I took him to the doctor, who gave me the same routine about kids all developing differently, and that Nate would be fine.
Long story short, I found Tennessee Early Intervention. (That’s the website for the Memphis district, the Middle Tennessee district doesn’t seem to have a website. It’s the same thing, just different district.) They came out, tested Nate, and he had some pretty serious delays. The worst were in speech development and social development, but he was delayed in every single area they tested him in.
So, he got occupational therapy to help him learn to cope with the world (Nate is light defensive and oral defensive, and some other things) and speech therapy to teach him to communicate with us, and finally, he’s going to go to preschool to help with the social development.
So today was his first day. I dropped him off, then parked and went back in to watch from the booth where you can see them, but they can’t see you. Megs came with me. I wish I could say he was fine, and didn’t cry, but he cried. For me, even, which is something I thought I would never see, because he loves his daddy so much but doesn’t seem to be all that impressed with me.
The funny part:
There’s the sweetest little girl in there that is missing the bottom part of her leg, just past the knee. At some point I noticed this because her false leg was randomly sitting on one of the tables. Megs noticed it, “Look, mama, a leg is on the table.”
I said, “Yes, they must have had to take that little girl’s leg off.”
Megs: “They know how to take legs off here. Man, Nate had better start behaving, or they’ll take his leg off next.”
Baaahahahahahaaaaaa!
I did explain to her how sometimes, people aren’t born with all their body parts, or they lose them in accidents. But I still think Megs somehow thinks they’re going to take Nate’s leg off if he doesn’t behave himself.
























January 25, 2006 at 2:04 pm
Ah. I wondered if it was something like Autism, based on what you had posted previously. I read the first half of the link but skimmed the rest. Is this a type of autism, a subset of autism or tangentially related to it? (Sorry, I come from doctors, nurses and special ed teachers. I’m just curious because I’m curious. Forgivme my nosiness.)
It sounds like he’s getting fantastic help. I can’t imagine how scared you were when you knew something was wrong and no one would listen.
Plus, that was hysterical about the leg.
January 25, 2006 at 2:14 pm
I’m back now. Did some more research. Apparently you can have SID without having Autism, but most people who have Autism also exhibit some form of SID.
I bet that it’ll be even more confusing when you try to get him treatment for it. Autism (I have a cousin with it) is very difficult for people to understand anyway. People get very upset when the special-needs person doesn’t LOOK as though they need help.
Not that this has anything to do with you, but it’s actually been kind of a controversy for us Disney World junkies. If you have a child with Autism you used to be able to present a letter to WDW authorities from your doctor explaining your child’s special needs. Many children with Asperger’s or other forms of Autism can’t be in crowds, stand too long, etc. Disney World used to give front-of-line passes to these children. A couple of years ago one of the more unethical website operators told people this was a good way to get a front-of-line pass, since Autism/Asperger’s/SID isn’t visually detectable. Disney was inundated with fraudulent requests from people who tried to pass off their kids as autistic to cut in the front of the line. People are *^&(*&^*^*(*(.
I have no idea why I thought of that now, except that in thinking of you guys it seems like you have already run into the “he looks normal so there isn’t really a problem” syndrome.
January 25, 2006 at 2:28 pm
Ha, I came to answer you about that, and you’d already answered your own question.
I was really, realy afraid he was autistic, because (totally selfishly) I was afraid I would have to take care of him for the rest of his life. I mean, I still might, but odds are, I won’t have to take care of him for the rest of his life and for that I am eternally grateful.
Yeah, one of the most frustrating things about Nate and his SID is people will actually say, “He doesn’t LOOK like he has something wrong with him.” Or, like, he’ll be throwing an absolute fit at the grocery store, and I’ve bought too much to just walk out, but there are still key items I really need to get (or there’s a long line at the cash register) and I just know people are thinking, “What a BAD mother”, or “What is wrong with that kid?” But try explaining SID to a stranger in about 30 seconds. I’ve told people, “He’s got something like autism, that’s why he gets so upset sometimes”. People “get” what autism is, and will generally shut up and stop giving me evil looks. Generally.
One time I had an old man tell me I shouldn’t take him out in public at all, when I explained to him that Nate couldn’t help it. Ugh. People really, really suck.
January 25, 2006 at 2:50 pm
A Momma’s intuition is a very strong thing. I’ve read many articles where the Dr.’s said everything was fine but Mom knew different. I think its a natural reaction for an outside friend to want to hope, think, or say everything is going to be ok. I’m glad that now he is getting help so everything is a lot better.
Megs reaction to the leg was hilarious. That is the kind of thing Dylan would be talking about for a long time! Why is her leg missing? Why did that happen? Why, Why, Why???
January 25, 2006 at 8:19 pm
I was raised by my mom and she was sans a leg and arm. The only thing she could not do was croquet and chase me down. But since I had to return home sooner or later i would still get the butt whipping I deserved.
January 26, 2006 at 2:38 pm
I am glad mothers intuition won over and Nate got the help he needed. We also did Early Intervention and it made such a difference in the Cap’n’s abilities.
January 27, 2006 at 10:44 pm
I know wha you mean about seeing you kids fall behind. Both of our boys are speech delayed. We noticed it about a year after they were born. We discounted it because they are bys and they are twins. Both factors effect speech development. They have been getting therapy for the past 6 months. So far, they have recovered about half of what they ae missing. Thank God.
Thanks for sharing your story. I know that what I’m dealing with si not a tough as what you are dealing with but It’s great to know that there’s someone out there who understands. Thanks for sharing your struggles.